Archive for the ‘stories’ Category

12
Jul

Nathan’s Big Adventure

   Posted by: Micah

The 4th of July weekend was a busy one for us. I worked Saturday and Monday, days I could have had off, to help get a friend’s house ready for him to move in. Sunday was a whirlwind of fun, fellowship, and business. I spent a lot of the day playing volleyball. Nathan bounced between aunts, uncles, grandparents, his mother, and good friends. Understandably by the end of the day he was exhausted and emotional. We chalked it up to the busyness, the potluck food, and the liberal amounts of root beer lovingly administered by uncles and friends. He slept the whole way home, and all the way to his bed, for which we were grateful.

Around 3:30 Monday he came into our room crying (our rooms adjoin). Before we could get to him he was on his hands and knees vomiting and filling his diaper with diarrhea. By later in the morning he had blood in his diarrhea. He felt well enough to play some, however.

Tuesday he was very listless and vomiting more, but the diarrhea appeared to have stopped. Tuesday afternoon it returned, and so we took Nathan to the closest ER, which was a small hospital in Bolivar. They gave him an IV, took his blood, and then admitted us, because the staff pediatrician was not on call until 7:30 the next morning. When she came in she did more blood tests (more blood tests quickly became a trend), because she didn’t like what she saw. She told us she was afraid Nathan had Hemolytic Uremic Syndrome (HUS). The tests showed the levels of certain chemicals controlled by the kidneys, so if there was a trend of those chemicals not going the right direction, he probably had it.

[HUS is a clinically diagnosed disorder, meaning that they look at over-all symptoms and circumstances for diagnoses. The two big chemicals they monitor are Creatinine and BUN. The kidneys manage the levels of them, and when they get too high they do a lot of damage to the kidneys. The basic explanation of HUS is that a bacteria attacks the body, and the process of fighting the bacteria puts too much stress on the kidneys and they begin to shut down. A majority of HUS cases are caused by E Coli. Nathan's was not. We may never know what initially caused this for him. The treatment is essentially to help the kidneys do their job so the body can spend it's energy fixing the kidneys. If small measures don't work, Dialysis usually does. If it is caught early enough, usually there is no lasting damage to the kidneys.]

Since Bolivar was not equipped to do anything further in our care, we were sent via ambulance to St. John’s, where we had excellent care and were given lots of information on HUS. Dr. Downs, who was in charge of Nathan’s care at St. John’s, continued to monitor his blood levels, and warned us of the possibility of transferring for dialysis, since St. John’s is not equipped to do pediatric dialysis. Thursday night we were transferred to Columbia in case Nathan ended up needing dialysis. His levels had made two jumps in the wrong direction, so we anticipated that it would be likely.

Nathan and Natalie arrived at Columbia around 1AM, and Miriam and I arrived shortly after. We had a fairly uneventful but mostly sleepless (for adults) night. Thursday Nathan’s levels were closely monitored, and a catheter was inserted. Although his levels of Creatinine and BUN did get higher they did not take a big leap. His potassium was still too high, and he was given a medication to help him eliminate that. The decision was made that we would plan on putting in a peritoneal dialysis catheter in Friday morning, and put in a central line as well (which will be used for blood draws, etc, and prevent him from getting even more needle pokes).

The surgery went well, and pretty soon they hooked up to dialysis. Peritoneal dialysis pumps a liquid into his belly, which absorbs toxins via some sort of osmosis, and then pumps it back out. Then it does it again, and keeps pumping and absorbing, and draining, until they decide he’s better.

Nathan was understandably tired Saturday, but he really enjoyed seeing a bunch of his aunts and uncles and both grandpas who all drove up to see him. Jedediah got his first giggle out him since the whole things started. Sunday showed huge improvements in energy, alertness, and attitude. He smiled, giggled, and ate more than he had all week.

Whenever he’s been awake he seems to try to hold onto anything that’s familiar. When his uncles were here he couldn’t stop repeating their names and telling them hi. He is constantly greeting us and Miriam by name, even when we have just been sitting here not moving.

His blood tests have begun coming back with minor improvements. This is of course a huge improvement to us, because they aren’t drastic declines anymore. We don’t know how long it will take for him to get better enough for them to send us home. Some patients make fairly quick recoveries, and some take a while. But overall the prognosis is hopeful. Once his incisions from the surgery heal some more, and if he continues to improve, they will move us out of the ICU in a day or two. The main advantage to that will be comfort, because the ICU has very small rooms.

Through all of this our faith has been challenged, stretched, and grown. But God has been faithful and carried us through. Things we feared have been helps. Our families, church, and friends have come through in unbelievable ways. But mostly, God has given us peace and hope. This hasn’t been easy, but God is good and is carrying us through.

    I had had an itch to write for a time. There was that burn inside to express things, but not to merely express then; to tell them as stories. I tried the modern man’s method, the computer, but it was useless. There were too many distractions. Email to check, blogs to read, no end of other things that could be done without ever leaving the comfort of my seat. No, the computer wasn’t for me. So I tried to write by long-0hand. It was better, but it took too long to get each thought on the page. Finally the idea struck me, what I needed was a typewriter.
A typewriter would be perfect. It would never crash, I wouldn’t have to save my work every five minutes, and the only virus protection it would need would be Lysol. A typewriter was the perfect solution. Typewriters are prettier than computers, more elegant that is, and much more encouraging. What computer ever salved your pride by dinging positively at the end of every line to signify progress?
Yes, a typewriter was the thing for me. But where to acquire an outdated, obsolete, retro beast? I decided the thing must to do must be to keep my eyes open, and be patient. Eventually, I found an ad for not, one, but two free typewriters. . I jumped all over it. I contacted the number in the ad, and arranged for them to be placed outside the person’s doorstep. I showed up at the appointed time. No typewriters, and no one home. I made my way back to my own home, call the number again, and set up a time to try again. My continued endeavors were met, initially, with success. The nice lady handed me the typewriters, free of charge. “Do you know anything about typewriter repair?” she asked. Well, said I, I am fairly handy.
Ha! Handy. Handy fixes plumbing and changes the oil. Typewriters, it turns out, are precision pieces of machinery. There’s not much fooling around inside a typewriter. There are millions of little levers springs, and do-hickies. Edison figured out electricity, but these contraptions would have given him coniption fits.
I just did not have the time to solve all the puzzles of one of these fine, precision instruments. If I could fix one of these, it would be my civic duty to open a business offering my services to all the other starving, eccentric maniacs out there. No, I had other, more profitable, things to do. Or so I thought.
It has been said that God has a sense of humor. As it turns out, I very possibly may have been the brunt of one of His jokes. It looked like an ice storm to me. One couldn’t go outside for two days straight without slipping and ending sunny side up. So, with nothing else to do, and a yearning for a working typewriter, I approached the machine of the two I was less fond of with a screwdriver and a set of pliers.
Getting it apart was easy enough. A few screws here, a spring there, it was open. So far    so good, it seemed. All the parts were carefully organized, as I removed them, on a cookie sheet. With any luck, I hoped, the dog wouldn’t charge through and upset them.
Once apart I began looking at the thing carefully, applying all of the limited knowledge I had acquired over the past few days, assessing the symptoms. Eventually I narrowed it down to one cog that was not turning freely. One cog, which I could see and access from outside before disassembling the whole machine. I decided a little oil should do the trick, and then on to re-assembling it all.
Little did I know, the fun was about to begin. First, as I held a certain assembly, it fell apart. Little balls and washers rolled onto the carpet, like treasure looking for a pack-rat.
The reconstruction process was a long, exhausting one. For hours I assessed and compared parts, probing my memory of where they had come from, what their job was, and how they were supposed to do when placed in their proper location. Eventually I got it back together, the original problem solved. Only, then I had five more problems, each twice as frustrating. One particular assembly of springs and levers would not go back into position correctly no matter what I did. It would have been helpful if I had noticed before ruthlessly disassembling it like an oaf in a butcher shop, how it had sat. But I did not. Somehow I had assumed that it would just go back the way it had been before. It would not. Finally, after much frustration, I gave up, promising to come back later. I set the contraption down, and the assembly slid back into its place.
Finally I put the whole thing back together and typed out a sample sheet. All the keys worked, the carriage progressed nicely, the bell even worked. The only problem was that the keys didn’t print in nice even rows. When I typed across the keyboard (qwerty) the letters ascended in nice little staircases, so that the q, a, and z were at the bottom, and the p, l, and m were nearly a full line higher. When typing words and sentences, the effect was very random. The words gave the impression of a roller coaster, or the back-roads of any given county in the Ozarks. I was baffled and beat. I had a working model of a third grade boy’s dream typewriter. I put it up at last, discouraged.
I sat down with a book to relax and read. I succeeded in relaxing. As I drifted off to sleep, I very dimly though about the problem with the typewriter. Suddenly, like a bolt of lightning in a blue sky, I realized what the problem was, and, as soon as I woke up, I made one small adjustment that fixed the machine’s Jacob’s Ladder complex. I am now the proud owner of a working 1970′s teal Smith-Corona Corsair Deluxe.

The original of this post was composed on a Smith-Corona typewriter.